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At the request of the U.S. Congressional House Appropriations Committee to address the development of diagnostic tests for rare diseases, the Office of Rare Diseases (ORD) established the Collaboration, Education, and Test Translation (CETT) Program for Rare Genetic Diseases, a pilot program to promote new genetic test development and better understanding of each rare disease. Under this program, laboratories, clinicians, and patient advocacy groups may apply for funds to develop a new clinical test for a rare genetic disease. |
